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What is Survivorship Care?

After finishing treatment, survivorship care supports your health and recovery as you move forward with life. It's about managing both ongoing side effects and new challenges that may appear over time.

Survivorship Care

Survivorship care refers to the ongoing health care and support that a person receives after completing cancer treatment. It addresses the unique physical, emotional, and practical challenges faced by cancer survivors as they move into the next chapter of their lives.

Key Focus Areas:

  • Monitoring for cancer recurrence or new cancers

  • Managing long-term or late effects of treatment (e.g., fatigue, nerve pain, hormonal changes)

  • Supporting emotional well being, including anxiety, depression, and fear of recurrence

  • Rehabilitation and recovery: helping patients regain strength, mobility, and function

  • Promoting healthy habits like good nutrition, exercise, and smoking cessation

  • Coordinating care between oncology, primary care, mental health, and supportive services

 

** Think of it as a bridge between active cancer treatment and long-term wellness.

Ringash J. Survivorship and Quality of Life in Head and Neck Cancer. J Clin Oncol. 2015;33(29):3322-3327. doi:10.1200/JCO.2015.61.4115

Follow up Care

After cancer treatment, you’ll continue to see health care providers regularly to monitor for any signs of recurrence and address lingering health concerns.

Visit May Include:

  • Physical exams and imaging (CT, mammogram, MRI, etc.)

  • Blood work to monitor labs or tumor markers.

  • Bone density scans, especially if treatments caused bone thinning.

  • Surveillance for new cancers, especially if you are at higher genetic risk.

How often you see your provider may vary, this depends on the type of cancer you were treated for and what type of treatment you received.

Simcock R, Simo R. Follow-up and Survivorship in Head and Neck Cancer. Clin Oncol (R Coll Radiol). 2016;28(7):451-458. doi:10.1016/j.clon.2016.03.004

Managing Side Effects

Cancer treatment can have lasting effects, even after it’s over. Some may start months or even years later, these are called late effects.

Common Long Term Side Effects:

  • Dysphagia (trouble swallowing)

  • Xerostomia (dry mouth)

  • Lymphedema 

  • Impaired wound healing and Skin changes

  • Speech and Voice Changes 

  • Changes in weight and appetite

Your oncology team may refer you to specialists such as rehab therapists, endocrinologists, or pain management providers.

Brook I. Late side effects of radiation treatment for head and neck cancer. Radiat Oncol J. 2020;38(2):84-92. doi:10.3857/roj.2020.00213

Mental and Emotional Health

Many survivors experience emotional challenges, even after successful treatment. Survivorship care includes mental health support to help process and manage:

Emotional Effects:

  • Fear of recurrence

  • Depression or sadness

  • Changes in relationships

  • PTSD like symptoms

  • Social isolation

Support Resources:

  • Oncology social workers

  • Individual or group therapy

  • Cancer-specific support groups (in-person or online)

  • Peer navigation programs

 

 Emotional healing is just as important as physical recovery. Please contact your provider if you feel like you need help. 

Götze H, Friedrich M, Taubenheim S, Dietz A, Lordick F, Mehnert A. Depression and anxiety in long-term survivors 5 and 10 years after cancer diagnosis. Support Care Cancer. 2020;28(1):211-220. doi:10.1007/s00520-019-04805-1

Who is part of your Survivorship Team? 

Oncologist 

Oversees surveillance, coordinates specialized care. Can include your radiation oncologist, surgical oncologist, and medical oncologist 

Physical Therapist/Occupational Therapist

Helps with strength, balance, and physical recovery

Primary Care Provider

Manages general health, vaccinations, chronic disease. Can be an MD, PA or NP

Dietitian

Guides healthy eating and nutritional recovery

Social Workers

Offers emotional support, financial help, housing resources. A great resource. 

Therapist/Counselor 

Provides coping strategies for stress, anxiety, trauma. Can be meet daily, weekly, biweekly or monthly.

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CONTACT US

If you have any questions about survivorship care, advance care planning, or need assistance with any of the resources provided on this site, please don’t hesitate to get in touch. We’re here to support you on your journey.

Cancer Survivorship Coordinator / Navigator / Support Specialist

By phone: 631-626-4687

By email: ybp23@drexel.edu

Developed by Yoselyn Pineda in fulfillment of the requirements for the Drexel University Physician Assistant Graduate Program.Powered and secured by Wix

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